Today the doctor reminded me that the odds are and have been stacked against Leo ever eating by mouth. Just having the diagnosis of Wolf Hirschhorn Syndrome puts him at a disadvantage to eating my mouth. (By the some of Leo's WHS friends do eat my mouth) BUT the team at the feeding clinic all believe Leo can do this. They see Leo and not a diagnosis. They believe in Leo. They also know this is extremely hard work for him and they are realistic. I was reminded once again that this is a marathon not a sprint. Leo will master this, it will just take time. They are predicting Leo will eat and chew by mouth and get off his feeds, but on Leo's time table not ours.
Now we prepare to transition to home. Leo came to the clinic taking 5 g tube feeds a day. He will go home on 4. Progress. We will return June 22nd for a follow up and adjust his feeds accordingly.
Please continue to pray for Leo. Pray we finish strong and that even in these last 2 days Leo's volume increases.