So thankful to be home!

To say we had an eventful weekend would be an understatement.

Our weekend began Friday night with a trip to our local ER because Leo was having difficulty breathing- got him breathing- sent us home.

We were in the door literally 5 minutes and Leo had a seizure due to spike in fever.

Short version- ambulance ride to a different ER where we were admitted- total of 4 seizures occurred. In case you are wondering seizures are scary especially when your 17 month old is having one and you are home alone. A special shout out- to our local fire and ambulance company. We need to make and take them cookies as a thank you! This 911 call had a full size ladder fire truck at our door before the ambulance.

Discharged from hospital on Sunday morning.

Visited our pediatrician on Monday morning b/c Leo was back to not breathing right.

Sent to our 3rd ER where they gave him some more medicine and sent us home.
I think we have finally turned the corner. He still has snot, he is still breathing heavy, but he is breathing and that is all that matters.

We will be seeing a neurologist next Wednesday about the seizures and deciding what to do about so many seizures. For now we have special medicine to give him in the event of a seizure between now and Wed.
We are soooo thankful for friends and family who have stepped in to help us and take care of the other kids while we were at the hospital with Leo.

Please pray that Leo will be healthy enough to have surgery on November 14th!

Praising God!

Thank you to all who prayed that we would receive answers at Leo's appointment today. God really out did himself!

I feel like the weight of the world has been lifted from my shoulders! Today, Leo and I met with an awesome doctor, his 2 side kicks and a dietitian. The doctor literally just sat and watched Leo do a tube feeding for a half hour. As he watched him, he just kept saying "this isn't right, this isn't right!" They hooked him up and monitored his heart rate during the feed. They checked his blood sugar. They LISTENED to me and saw first hand what I was saying. We were with this team for almost 2 hours! Bottom line- Leo is being over fed on the wrong type of food. They sent me home with a case of new formula to try. We also scheduled surgery to have a g-tube put in and a fundoplication done. They really showed compassion for Leo and all he has been through.

I have been trying to set up Leo's eye surgery and bronchoscopy for literally 3 weeks and I have been getting the run around. Apparently, the doctor we saw today has rank because within minutes of his surgery being scheduled for November 14th, both the eye doctor's secretary and the ENT secretary jumped on board and both of these surgeries will be done on the 14th.

So, November 14th will be a huge day as Leo will have 4 procedures done. He will be in the hospital for at least 3 days. I am still waiting to talk to the Cardio doctor, BUT amazingly he called while I was driving home and should be calling me back shortly. (it might have had something to do with him being emailed by my new favorite doctor about the upcoming surgery and needing clearance:)

I feel like we are headed in the right direction and I really think a huge part of Leo's medical riddles were untangled today!

Before and After

Soccer in the morning....

Dressed and ready to go...

to Bethany's Annual Fudraising Banquet!

From our standpoint, the night was a success! Jeremy did a great job sharing from his heart and many people commented afterwards on what he said. Although, we will be honest and say we did feel a little out of our league at the banquet.