Wednesday, November 14, 2012

God is Good

This is how Leo spends most of his days...

pushing cars, any car from one part of the house to the other

and on any surface. Someday I hope to hear him say, "Beep, Beep!"

Jeremy has some exciting news to share. It is so awesome to pray for something for a long time. Almost give up hope of it ever happening and then have God surprise you out of the blue. I will try and get him to share soon!

Tuesday, November 13, 2012

In Case You Didn't Hear....

WE WON!!!!  I realize that not all of our blog readers are facebook friends so I wanted to make sure we got the word out that Leo the Lion came in first place with 501 votes.  Thank you to all who voted for him.  We are waiting for his new ipad to be delivered.  Jeremy has promised to help me learn how to navigate the ipad and how to download apps that will be most beneficial to Leo (and his brothers).  We are anticipating using the ipad for developing some fine motor skills, cause and effect skills, and fun interaction when he is eating and has to be in his high chair.  Thank you again for voting and helping to spread the word. 

Leo is doing so well.  Last week his PT helped him climb up on our turned over laundry basket, which was pushed against the sofa,  to finally climb up on the sofa.  He was so proud of himself and continued to do it at least another 15 times.  I was especially pleased when our PT said repeating a learned skill like that over and over is typical toddler behavior.  Yea!  Typical toddler- not words usually associated with Leo.  Eating is still a work in progress, but I have hope that someday he will eat by mouth.  He is also using the sign for "daddy", "more" and "I want" somewhat consistently.

Life is busy as like everyone else we are gearing up for Thanksgiving.  Jeremy spent some time tonight helping our nephew work on a graduation project for school.  We are catching a glimpse for how demanding high school work can be and how much a teenage boy can eat.  I do believe I will be in trouble when all 5 boys are teenagers. 

We have some exciting things in the works for 2013 and will take the time to share them in a later post.  God is at work and is opening some doors we are excited to walk through. 

Tuesday, November 6, 2012

Leo Needs Your Help

Sorry for the desperate sounding title but Leo really does need your help.  We have entered him in a contest to win an Ipad.  Leo is entered in a contest on the Wolfhirschhorn website.  The top winners will receive an Ipad.  This technology could really help Leo with his therapies and his life in general.

The purpose of the contest is to draw attention to Wolf-Hirschhorn syndrome and to educate people on what it is by getting them to this amazing site that educates parents and families. Kevin, who runs the site, is actually the first person we contacted to learn more about Wolf-Hirschhorn when we were considering adopting Leo. He spent over an hour on the phone with Jeremy answering all of his questions. The parents we have "met" on this site are incredible and have been an encouragement to us. We actually don't like that we are competing against them.


What we need: we need you to vote for Leo!!!! You can only vote once. So, could you please encourage your friends and family to vote, forward this blog to everyone and put something on your facebook account if you have one!!!! Leo needs all the votes he can get.

Go to this site to vote:
 http://wolfhirschhorn.org/2012-halloween-contest/
Leo the Lion with the cute blue glasses is about half way down the page!

They ran this contest last year, but we didn't enter b/c Leo was in the hospital having surgery. Last years winner had over 700 votes, so you can see the competition is stiff as the prize is so great!

The Contest is open till Saturday, November 10th